“I have never been allowed to be holy, / I have never been forgiven for wanting.”
— Gwen Benaway, from “Boys,” Holy Wild
(via lifeinpoetry)
“Perhaps you have forgotten. That’s one of the great problems of our modern world, you know. Forgetting. The victim never forgets. Ask an Irishman what the English did to him in 1920 and he’ll tell you the day of the month and the time and the name of every man they killed. Ask an Iranian what the English did to him in 1953 and he’ll tell you. His child will tell you. His grandchild will tell you. And when he has one, his great-grandchild will tell you too. But ask an Englishman—” He flung up his hands in mock ignorance. “If he ever knew, he has forgotten. ‘Move on!’ you tell us. ‘Move on! Forget what we’ve done to you. Tomorrow’s another day!’ But it isn’t, Mr. Brue.” He still had Brue’s hand. “Tomorrow was created yesterday, you see. That is the point I was making to you. And by the day before yesterday, too. To ignore history is to ignore the wolf at the door.”
- A Most Wanted Man, John le Carré
John le Carré has not, at any point, been fucking around.
I dont know who needs to hear this
But I sure did:
You can and absolutely should modify the chore/self care task if it makes life easier. Sit on the floor while doing laundry. Clean dishes while in a chair. Sit in the shower.
Save your spoons. Accommodate your fatigue rather than fighting it.
Here’s a reminder that you don’t have to faint to have pots, and your pots is literally just as valid as anyone else’s, even if you never faint.
I always dealt with presyncope, never ever syncope. But my body decided to change it up this year, and now I’ve been dealing with the ✨ fainting episodes ✨ that have happened both in public at at my home.
I never ever thought I would actually faint, I always thought that it wasn’t “that bad” because I never fainted, I never went unconscious so what’s so bad about it, right?(/s)
Pots is pots, it’s not called postural orthostatic tachycardia fainting syndrome. It is what it is and whether or not you faint doesn’t determine the diagnosis! Fainting isn’t a prerequisite to getting diagnosed! Some pots patients have it bad, and some have it better. But either way, someone who faints 5 times a day, or faints occasionally (bonjour, it’s me) or never ever faints at all, we all share the same diagnosis!
Your presenting symptoms don’t equate the validity of your disorder.
